In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
Child star Mara Wilson, 37, left Hollywood after ‘Matilda’ as she was ‘not cute anymore’
The world first fell in love with the endearing Mara Wilson in the early 1990s. She was a child actor best remembered for her roles as the bright young girl in beloved family films like Miracle on 34th Street and Mrs. Doubtfire.
The rising actress, who turned 37 on July 24, looked like she was ready for big things, but as she got older, she lost her “cute” factor and vanished from the big screen.
She continues, “If you’re not cute anymore, if you’re not beautiful, then you are worthless. Hollywood was burned out on me.”
To find out what happened to Wilson, continue reading!
When five-year-old Mara Wilson played Robin Williams’ youngest kid in Mrs. Doubtfire in 1993, she won over millions of fans’ hearts.
When the California native was invited to feature in one of the highest-grossing comedies in Hollywood history, she had already made appearances in advertisements.
“My parents grounded me even though they were proud of me.” My mother would always tell me that I’m just an actor if I ever stated something like, “I’m the greatest!” Wilson, who is now 37, remarked, “You’re just a kid.”
Following her big screen premiere, she was cast in 1994’s Miracle on 34th Street as Susan Walker, the same character Natalie Wood had performed in 1947.
Wilson describes her audition as follows: “I read my lines for the production team and told them I didn’t believe in Santa Claus” in an essay for the Guardian. “But I did believe in the tooth fairy and had named mine after Sally Field,” she writes, referring to the Oscar-winning performer who portrayed her mother in Mrs. Doubtfire.
“Very unhappy”
Next, Wilson starred with Danny DeVito and his real-life wife Rhea Perlman in the 1996 film Matilda as the magical girl.
Additionally, Suzie, her mother, lost her fight against breast cancer in that same year.
“I wasn’t really sure of my identity.I was two different people before and after that. Regarding her profound grief following her mother’s passing, Wilson explains, “She was like this omnipresent thing in my life.””I found it kind of overwhelming,” she continues. I mostly just wanted to be a typical child, especially in the wake of my mother’s passing.
The young girl claims that she was “the most unhappy” and that she was fatigued when she became “very famous.”
She reluctantly took on her final significant role in the 2000 fantasy adventure movie Thomas and the Magic Railroad at the age of 11. “The characters had too little age. I reacted viscerally to [the] writing at 11 years old.I thought, ugh. I love it, she says to the Guardian.
“Destroyed”
Her decision to leave Hollywood wasn’t the only one, though.
Wilson was going through puberty and growing out of the “cute” position as a young teenager, so the roles weren’t coming in for him.
“Just another weird, nerdy, loud girl with bad hair and teeth, whose bra strap was always showing,” was how she was described.
“When I was thirteen, no one had complimented me on my appearance or called me cute—at least not in a flattering way.”
Wilson had to cope with the demands of celebrity and the difficulties of becoming an adult in the public glare. It had a great influence on her, her shifting image.
“I had this Hollywood notion that you are worthless if you are not attractive or cute anymore. Because I connected that directly to my career’s downfall. Rejection still hurts, even if I was kind of burned out on it and Hollywood was burned out on me.
Mara in the role of author
Wilson wrote her first book, “Where Am I Now?,” before becoming a writer. “Ancidental Fame and True Tales of Childhood,” published in 2016.
The book explores “her journey from accidental fame to relative (but happy) obscurity, covering everything from what she learned about sex on the set of Melrose Place, to discovering in adolescence that she was no longer ‘cute’ enough for Hollywood.”
In addition, she penned the memoir “Good Girls Don’t,” which explores her experiences living up to expectations as a young performer.
In her Guardian column, she states, “Being cute just made me miserable.” It was always my expectation that I would give up acting, not the other way around.
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