Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

I Started Wearing “Terrible Wigs” at Work After They Banned My Pink Hair

A 29-year-woman was faced with a dilemma shortly after she took on a job offer. She was told she either had to cover up her pink hair or look for work elsewhere. She accepted the challenge and her amusing way of overcoming the restriction has gone viral.

Emily Benschoter turned to TikTok to share her journey at her new workplace, but with the twist that she can never show her pink hair while she’s on duty. She only found out the fact after she had already been interviewed and offered the position, a front-of-house role in the hospitality industry, because there was no prior contact with her employers in-person or over video chat during the hiring process.

Her manager then suggested she wore a wig and that’s when she decided to pick the funniest ones she could find. Her first TikTok video with the first wig went up on July 19, 2023, and it read: “When you have pink hair, but corporate does not approve, so you wear terrible wigs.”

Since then, people have become invested in her wig choices and her clips have been viewed millions of times. “The worse the wig, the better,” she admitted in an interview. “It is a way to open up the conversation with the customers who think it is insane that I have to cover my pink hair.”

In the same interview, Benschoter also took time to explain why she didn’t just simply dye her hair instead. “Dying my hair for a job I work at for 40 hours per week wasn’t an option,” she revealed. “I am a self-expressive person and I feel very confident with pink hair, so I came up with a solution to keep the job and my hair.”

Despite her having fun with the situation, she doesn’t approve of it. “It’s dehumanizing that I can’t be accepted at face value because my hair is a non-traditional color,” she said. “It’s so superficial that my hair color is an obstacle.”

As we’ve seen, job requirements when it comes to our physical appearance can be an issue for some. For a woman known as the “Dragon Girl,” it’s actually been an impossible task to overcome. Amber Luke chose to get over 600 tattoos to change her appearance, but now people refuse to employ her.

Preview photo credit emuhleeebee / TikTokemuhleeebee / TikTok

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