Rebecca Callaghan faced a challenging pregnancy in 2012 when doctors decided to induce labor early due to excess fluid around her baby.
It wasn’t until about an hour after Matilda was born that any issues were suspected. Initially, a large blue mark on her face and extending down her body was mistaken for a bruise. However, just 30 minutes later, doctors informed Rebecca and her husband that it was, in fact, a birthmark.
Two weeks postpartum, Matilda was diagnosed with Sturge-Weber syndrome, a rare neurological condition associated with skin abnormalities that can lead to paralysis, learning difficulties, and seizures.
Matilda’s health quickly deteriorated, necessitating her transfer to Alder Hey Children’s Hospital in Liverpool, England. The parents’ joy transformed into deep anxiety, as they feared they might lose their newborn. “We couldn’t travel with her because she was so sick. Watching her taken away, we were terrified we’d never see her again”, her father shared with the Daily Mail.
Adding to their worries, they discovered Matilda had two heart defects. Despite the grim prognosis, she displayed remarkable resilience, successfully undergoing surgery. She also began laser treatments to address her unusual birthmark, a process that could take up to 16 hours to fully fade.
“She receives treatments every two months. The laser leaves her skin red and covered in blisters, which eventually heal”, her father, Paul, explained in a 2016 interview. He recounted the misconceptions from others, stating: “People assume we’ve somehow harmed her”.
Although these treatments are painful, Matilda is a cheerful child. Sadly, many stare at her or make hurtful remarks, even asking if her parents had caused her birthmark by allowing her to burn herself. “They only see the surface and make judgments. I wish they could see beyond the mole to the beautiful person she is”, Paul lamented.
In addition to her birthmark, Matilda faces vision challenges and struggles to walk. Yet, with the help of specialized equipment, she has taken steps on her own.
Despite her struggles, Matilda remains upbeat and resilient. “She’s incredibly stubborn; she’ll do things her way or not at all!” her father noted, emphasizing that she always greets others with a smile. The family regularly confronts stares, insults, and teasing, but they remain proud of Matilda. “Despite everything, she’s thriving”, her father said.
Now nine years old, Matilda’s family recently shared an updated photo of her in her wheelchair in June 2019. They have set up a fundraising page to raise £5,000 for a new wheelchair, enabling Matilda to enjoy her favorite activity: spending time outdoors, away from crowds. “We want to help her continue doing what she loves”, the page states.
This Caribbean Island Is Back From the Brink—and Ready To Share Its Treasures With the World
Every product that appears on Condé Nast Traveler has been hand-picked by our editors. However, we might receive an affiliate commission if you make a purchase using one of our retail links.
The paintings of Italian-born artist Agostino Brunias, who made a profession of depicting the island in subdued, stylized settings that covered up the harsh realities of colonial control, were my first visual introduction to Dominica. However, as soon as I step onto its winding roads, which begin to twist shortly after I arrive, it becomes evident that this region, which is situated in the center of the Lesser Antilles’ curve, is anything but tame. The two-toned leaves of its bois canot trees, which change color from green to white when they sway in the wind, shimmer and bristle with the power of the volcano. It lulls with the erratic sound of its numerous waterfalls, scatters rainbows haphazardly across its breathtaking horizons, and enchants from the depths with its vibrant coral reefs. And it roars come storm season.
The indigenous Kalinago people of Dominica survived invasion by the French and British, who imposed slavery on the Africans who now make up four-fifths of the island’s population and left a linguistic legacy of English and French-based Creole, by mastering the lush tropical rainforest that covers more than 60% of the island. If you visit Trinidad for roti and Jamaica for jerk, you should travel to Dominica for green things like bush rum and flower teas. There are a ton of medicinal herbs in the forest.
The Jungle Bay Dominica resort, located smack dab in the center of the Soufrière jungles, leans into nature instead, maybe realizing the futility of fighting against the earth’s generosity. When I finally get there, the kitchen is closed. Joanne Hilaire, the operations manager, tells me that they never let guests go hungry, though, so I can feel the warmth of Dominica’s welcome. The cook is preparing an excellently stewed dish of beans with taro, rice, and plantain for our late dinner, off the menu, while I have a refreshing ginger-lime cocktail that is a local favorite. When I wake up the following morning, I find that my villa’s doors open onto a private veranda that faces southwest toward Soufrière Bay, where the Caribbean Sea and the Atlantic Ocean converge. I let the light wake me for the remainder of my stay by leaving my blinds open.
Leave a Reply