When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
I Yelled ‘I Don’t!’ at My Own Wedding after Conversation with Groom’s Mother Whose Plan Almost Worked Out
After a chance encounter and years of dating, Ryan and Hanna are about to walk down the aisle and commit to each other. But when Ryan’s mother reveals an incriminating video of Ryan with another woman, Hanna feels her heartbreak. But later, the truth of the video is revealed, along with more deceit than Hanna ever expected.
Do parents just enjoy dropping bombshells before weddings? When I say before—I mean 30 minutes before?
Because that’s exactly what Ryan’s mother did.
Ryan and I met two years ago—it was one of those by-chance meetings. I was at the community theatre because one of my friends, Mila, was in the local musical with her directorial debut.
So, there I was, standing outside after the performance, holding a bouquet of flowers for Mila. Ryan walked out, and because of the crowd, walked directly into me, crushing the flowers.
“I am so sorry,” he said, picking up the bouquet.
“I hate crowds,” I said.
He chuckled and gestured for us to move away from the door.
“I’m not a fan either,” he said. “I’m Ryan.”
“Hanna,” I said, introducing myself.
Just three months into our romance, Ryan proposed in a pub while drinking Guinness and eating crispy potato skins.
Last week, we should have sealed that promise with our wedding vows. But our wedding went in the complete opposite direction it should have gone.
Initially, my family welcomed Ryan with open arms. As the only daughter, my parents were thrilled that I had met someone who genuinely made me happy.
“This is a different side to you, Hanna,” my mother said one evening when we had Ryan over for family dinner.
“He makes her happy,” my father said, smiling. “That’s all a father could want.”
Ryan felt welcome—he felt the warmth that they showered him, and through that, we grew stronger as a couple, too.
On his side, it was more or less the same thing. The Coles opened their home and hearts to me, and they wanted nothing more than to have us over as much as possible. Mrs. Cole, Audrey, had gotten into a coffee date and manicure routine with me, too.
Everything felt right—until the very moment it wasn’t.
Leading up to our wedding, I was the calmest I could have been. It was a small church wedding, and Ryan and I had planned the intimate affair right down to the little details. We knew exactly what we wanted and how to make it special for our day.
But on what was meant to be the happiest day of my life, just before the ceremony, my soon-to-be mother-in-law pulled me aside.
“Darling,” she said. “Can we chat for a moment?”
I nodded and told her to wait until my glam team was done with my hair and makeup.
Something about her demeanor made me feel anxious and nervous. I watched her movements from my reflection in the mirror.
Her eyes moved around the room quickly, often settling on my wedding dress hanging from its hook.
When I was ready, and my mother was buttoning up my dress, I turned to Audrey.
“I’m ready when you are,” I said, smiling at her.
Her eyes glazed over, seeing me in the dress. She had been at my fittings before, but this was the moment that Audrey and my mother would see the full effect of my bridal outfit.
“Hanna,” Audrey said. “There’s no easy way for me to say this.”
My heart thundered in my chest. While my hair was being done, and I sat watching her, I knew that nothing good was going to come from our conversation.
“Just say it,” I said. “Tell me.”
Audrey pulled her phone out of her clutch and held it out for me.
“There are videos on this phone that will explain everything. I am so sorry, Hanna, but Ryan needs to be caught out.”
My mind raced. I couldn’t fathom what I was about to see once her phone was unlocked.
“Here,” she said, handing me her phone as a woman’s voice echoed through the room.
The videos on Audrey’s phone revealed Ryan with another woman, in clandestine affection, undeniable betrayal.
“Are you sure?” I asked. “This is him?”
Audrey closed her eyes and took a deep breath.
“Well, look at the jacket on the bed,” she said. “Isn’t that the one you got him?”
I pressed play again, and looked at the jacket. The hotel room also looked familiar—I was so sure that we had been there before.
“But Ryan’s face isn’t in the frame,” I said.
I was struggling. I couldn’t believe that my almost mother-in-law was standing in front of me with a video showing her son’s affair.
“Hanna,” she said slowly. “It’s right in front of you. You can choose to overlook it, but think of the man that you would be marrying if you choose to ignore it. Could you live with yourself knowing that? Could you live with him?”
I shook my head. I wanted to cry because of how overwhelmed I was.
“Fine,” I said.
“You’re calling off the wedding?” Audrey asked, hope lining her voice.
“No,” I said. “I’m going to walk down that aisle. I’m going to walk to the man who has been unfaithful to me. And when the time comes for our vows, I’ll break it off then.”
“Okay, dear,” Audrey said, putting her phone back into her bag. “It’s almost time now, anyway.”
I sat down on the chaise, and waited for my father to come and get me when it was time to marry Ryan. I wanted nothing more than to get into a car and drive away to some place where I could eat my feelings in a mountain of fries.
My heart violently pounded with fury as I approached the altar on my father’s arm. Ryan, aware of the storm brewing beneath my skin, smiled tenderly at me. He took my hand and squeezed it.
It would have been absolutely perfect, except for the fact that he had been with someone else.
Our priest went on to quote scripture about love and matrimony from the Bible. And when it was time for our vows, my heart quietened down—finally realizing what was about to come.
“I don’t,” I said softly, more to the ground than to Ryan.
“Speak louder, Hanna,” the priest said.
“I don’t!” I said more confidently, the words echoing like a resounding shockwave.
Ryan’s shock morphed into confusion as I repeated those two words again.
“Hanna? What?” he asked, hurt and betrayal deep in his voice.
“Ask your mom,” I said, pointing at Audrey. “Mrs. Cole, please tell everyone what you told me earlier.”
The church hushed immediately, as if everyone were holding their breath. With shaking hands, she opened her bag and took out her phone. Like earlier, she held it out to me.
“Look,” I said to Ryan.
Ryan took a step back, almost falling over the wedding arch.
“That is not me, Hanna!” he said loudly. “Hanna, you know it’s not me!”
I refused to look him in the eye.
Then he confronted his mother.
“Mom, what is all this? What is that? Where did you get that video?”
Audrey shook her head and walked down the aisle, leaving the church in silence.
I could not bear to hear Ryan’s excuses.
“Hanna, please,” he said. “I need you to believe me.”
And I wanted to. Of course, I wanted to believe the man I loved. But it was clear, the jacket that I bought him lay across the bed in the video. He had been with someone else.
And if there was the possibility that he wasn’t with another person—how would he explain the video? And the woman who was barely dressed? And the sound effects?
“I can’t do this,” I said. “I won’t.”
I ran out of the side door, my parents following closely behind.
Ryan continued to reach out to me for the rest of the day—and when night settled, I finally blocked his number.
Yet, two days later, when I was wrapped in a blanket wondering where everything had gone wrong—Ryan showed up at my parents’ house with takeout and flowers.
“You expect this to fix everything?” I asked.
“I need to talk,” he said simply.
Against my better judgment, I listened.
What Ryan revealed next sent me down another spiral.
He had confronted Audrey after the wedding.
“I went straight to her house,” he said. “She was sitting there, in her kitchen, eating toast and listening to old records as though she hadn’t just ruined our wedding.”
“I think you did that,” I blurted out.
“Hanna,” he warned. “My mother orchestrated that video. The people in it are her students. And it was all because she didn’t want us to get married.”
My jaw hit the ground.
Audrey was a high school teacher—but she also tutored first-year college kids in English. So, when it truly came down to the fact that Ryan and I were actually getting married, she panicked. She called two of her college students, who were too eager to make a bit of extra money, to play the part.
“I thought she liked me,” I said while digging into the food Ryan had brought over. “Clearly she doesn’t if she put an entire video together.”
“She did say that the sounds were edited,” Ryan chuckled nervously. “But I’ve got to hand it to her, adding my jacket was a good touch.”
I didn’t understand how I felt. For the past two days, since walking away from my own wedding—I convinced myself that Ryan had been the bad guy in my story. That he was the villain who broke my heart, while his mother exposed him for who he was.
And yet, the reality was so much worse.
Here was a woman who had claimed me as the daughter she never had, only to break my heart before marrying her son.
She believed I was unworthy of Ryan.
I forgave Ryan immediately, and he did the same in return—I did accuse him of cheating on me in front of all our guests.
We’re still together, but I don’t know what the future holds. For now, I feel hurt and betrayed by Audrey. And I know that forgiveness will be difficult to come by for her.
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