In many ways, Tomm Tennent was an incredibly unique person. From the moment he arrived in the world, everyone around him knew he was different from other babies. When he was born, he had excess skin, sufficient enough to cover a five-year-old kid.
Even the doctors were baffled when they saw his wrinkled appearance, as they had never seen anything like it in their medical career. Tomm’s parents, Debbie and Geoff Tennent were also flabbergasted when they saw their baby and didn’t know how to react.
Debbie and Geoff Tennent | Source: YouTube.com/60 Minutes Australia
From his incredible birth experience to his life after that, Tomm and his parents experienced a journey unlike any other. It all started when Debbie and Geoff welcomed their son in a South East Australia hospital in 1993.
Eventually, after years of trying and looking for a clue, they stumbled upon something astonishing.
At the time, they didn’t know how special their baby boy would be. Before Tomm’s birth, his parents couldn’t have guessed that their child would go on to mystify medical professionals. But when they went in for the ultrasounds, they discovered nothing was as expected.
Initially, the Tennents struggled to determine whether or not they would keep the baby. But after discussing the matter, it didn’t take them long to decide that regardless of the consequences, they would go through with the pregnancy.
Tomm Tennent pictured as a baby | YouTube.com/60 Minutes Australia
But while Debbie and Geoff were prepared for everything, they were oblivious to how serious their child’s condition could be. They were taken aback and rendered speechless when they laid eyes on their infant son for the first time.
“When [Tomm] came out, I was quite shocked…I didn’t think a human, or a little baby, could ever look like that,” recalled Geoff about the moment he first saw his son. Of the instance when her baby was placed on her chest, Debbie recounted:
“My heart came up to my throat.”
But at the same time, Debbie was overcome with motherly sentiments and said it felt lovely to cuddle her son. Despite their shocked initial reaction, the Tennents embraced their son, who had too much skin covering almost every inch of his body.
A close up of Tomm Tennent’s wrinkled legs and feet | Source: YouTube.com/60 Minutes Australia
Medical Mystery & the Challenges of Growing Up
Tomm’s never-before-seen skin condition and wrinkled look baffled his parents and doctors. Since they could not decipher the reason behind his excess skin, they didn’t know how to treat it.
After much contemplation, medical experts hoped that, over time, the boy would grow into his skin. But given the youngster’s unique appearance, researchers felt triggered to explore his case further and solve the rather complex genetic puzzle.
Debbie Tennent holds her son, Tomm Tennent, while petting a Shar Pei | Source: YouTube.com/60 Minutes Australia
Tomm was no stranger to hospital visits and stayed in a medical center for two and a half months. There, he had to undergo multiple tests and scans, which were reportedly insufficient in helping the researchers crack the code of his mysterious condition.
Andrew Ramsden, Tomm’s pediatrician, admitted that his case was incredibly challenging because he was the first baby born on record with excess skin, and the doctors had nowhere to turn to for guidance.
Accompanying their little boy on his many doctor’s visits and staying with him in the hospital for months wasn’t easy for the Tennents. But they found their strength and courage from looking at their sweet son, who was a happy tot and didn’t know the magnitude of his condition.
Tomm Tennent is pictured enjoying a bath | Source: YouTube.com/60 Minutes Australia
As time passed, Tomm’s doctors continued researching his condition, hoping to find something helpful. Eventually, after years of trying and looking for a clue, they stumbled upon something astonishing.
Medical professionals drew similarities between Tom’s appearance and the Shar Pei, a Chinese dog breed. They learned that the youngster’s excess skin was due to an oversupply of Hyaluronic Acid, which was 100 times higher than usual.
The same was true for Shar Pei puppies. Provided that the acid levels decreased in Shar Peis as they grew older and their appearance improved, the medical experts hoped for the same for Tomm.
Tomm Tennent pictured combing his hair while looking in the mirror. | Source: YouTube.com/60 Minutes Australia
Fortunately, as the doctors had anticipated, time was the best healer in Tomm’s case. Growing up, the Australian child received immense love and support from his parents. But he also experienced a multitude of challenges.
“Don’t judge people by what they looked like,” noted a young Tomm. Although he had always believed nothing was wrong with him, not everyone reciprocated his sentiments.
People continued to tease him, and he struggled to make friends at school. He felt hurt when kids refused to play with him or include him in their groups.
But instead of retreating and being demotivated by other people’s behavior toward him, Tomm began participating in games and made many friends. Soon, his school experience remarkably improved, and people started seeing him differently.
A young Tomm Tennent | Source: YouTube.com/60 Minutes Australia
While the Tennents were pleased to see their son move forward in life, some memories were etched in their minds. Debbie recollected an incident in a local bakery with Tomm when a woman approached her, questioning her decision to take her son out in public.
But that wasn’t all. The lady reportedly told Debbie that her son “should be kept hidden.” Devastated by the woman’s comments, the Australian mother didn’t know what to say to her then but vowed to care for her son and raise him in the best possible manner.
And as time would tell, Geoff and Debbie felt pure joy and pride seeing their son grow up. They were proud of him for being a good boy and excelling in every aspect of life, including school.
In an exclusive interview in 2003, the then-11-year-old Tomm said he saw a “kind, loving person” whenever he looked in the mirror. He confessed he wasn’t concerned about how his peers viewed him because they didn’t care about his appearance.
From the beginning, Debbie and Geoff taught their son to accept and love himself just as he was. The couple believed that real beauty came from within, and they instilled the same values in their beloved boy.
Their efforts paid off because when Tomm was asked if he would change anything about himself, he responded, “Probably nothing.” With his parents’ affection and his inner strength, Tomm became an exceptionally kind and lovable person.
A baby with a rare skin disorder is born after an urgent C-section by medical professionals.
Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
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