Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
18-Year-Old Football Star Chance Gainer Collapses on Field: Heartbreaking Details Unveiled
A high school football game in Florida ended in tragedy when an athlete collapsed during the game and later passed away.
The local community is deeply shocked and saddened by the event. Chance Gainer, an 18-year-old student and standout player from Port St. Joe High School, lost consciousness on the field while playing against Liberty County High School. Despite the quick response from medical staff, he was pronounced dead at a nearby hospital.
Gulf County School Superintendent Jim Norton said that when emergency responders first arrived, Gainer had no pulse. However, they were able to revive him before he was taken to the hospital in an ambulance. Unfortunately, he passed away after arriving at the clinic.
Liberty County Athletic Director Tim Davis, who was there at the time, shared more details about what happened after Gainer was taken away. “We got the news about an hour later that he had passed away. The game had about four minutes left in the fourth quarter, so we decided to finish it. This way, the Port St. Joe coaches could tell the players together,” he said.
Gainer’s death has deeply affected the Port St. Joe community. He was not only known for his impressive athletic skills but also for his kind and quiet nature. Norton described Gainer as an outstanding athlete and person, praising his “world-class speed” and even better personality.
The young athlete, who had a GPA above 4.0, had recently visited Vanderbilt University to explore college options. “This is the most heartbreaking situation,” said Superintendent Jim Norton on Saturday. He also asked everyone to keep Gainer’s parents and loved ones in their thoughts and prayers. On the same day, Port St. Joe High School opened its doors to allow the community to gather and mourn Gainer’s passing. Grief counselors were brought in to help students, staff, and the football team cope with the loss. The upcoming football game against Blountstown, scheduled for next Friday, has been postponed.
Many people had kind words about Gainer. Principal Sissy Godwin described him as “a very sweet young man” whose smile could light up any room. Football coach Tanner Jones called him “feisty” and noted his ability to “determine the outcome of games.” His friend Kolten Johnson remembered the moment he found out about Gainer’s death. He knew “something was wrong” when his mother started crying and told him the news after the game. Johnson said Gainer was “an amazing football player, an amazing friend, a great kid to be around.”
The news spread quickly on social media. The Florida High School Sports Athletic Association extended its condolences to Gainer’s family, friends, and the Port St. Joe community. One user wrote, “No mother should have to bury their child. I’m sending my deepest condolences and prayers to his family. Rest well, Chance Gainer.” Others also expressed their sadness and concerns. One person added, “It is heartbreaking. The safety of young athletes should be our primary concern in sports. The recent tragedies have shocked and saddened the entire community.”
To honor Gainer, the Gulf County School District has planned several events. A local pizza place donated pizzas for Monday’s lunch to give Gainer’s mother and aunts time to mourn. All schools in the district will be closed on Tuesday, and there will be a luncheon for athletes and coaches. Normal classes will resume on Wednesday. There is also a planned event called “Celebration of Life” on Saturday the 14th, though details are still being finalized. Our deepest condolences go to the Gainer family and the Port St. Joe community during this difficult time. Rest in peace, Chance Gainer.
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