Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Old Woman Brought Sons Favorite Pastry to His Grave And Found a Note upon Her Return, Story of the Day
For Nancy, her son Henry was everything. She couldn’t imagine life without him. It had been 23 years since the tragic accident that claimed Henry’s life, and every year on the anniversary, she honored his memory by bringing his favorite pie to his grave. But this year, something unexpected was about to happen.
For over two decades, Nancy, now 61, never missed a year. She would bake Henry’s favorite pie—an apple and cinnamon delight—and take it to his resting place. The scent of apples and cinnamon always brought back memories of her little boy eagerly running into the kitchen, his eyes lighting up at the sight of the fresh pie. It had been a tradition they both loved, a way for her to stay connected to him even after he was gone.
Since the accident that took Henry’s life at 17, this ritual became Nancy’s way of coping with her grief. The pain of losing him never truly left her, but baking the pie gave her a small sense of comfort, a way to feel close to her son.
On this particular day, as she carefully carried the freshly baked pie to the cemetery, the weight of the dish seemed heavier than usual. She placed the pie on Henry’s grave, gently running her fingers over the smooth stone that had become so familiar. “I miss you every day,” she whispered softly. “I baked your favorite pie again… I wish we could share it just one more time.”
With a heavy heart, she kissed her fingers and touched the gravestone, saying her quiet goodbye before leaving, as she always did. But the next day, when Nancy returned to clean up, she noticed something shocking—the pie was gone. Instead of the untouched or spoiled pie she usually found, the plate was empty. And on it was a folded piece of paper.
With trembling hands, Nancy opened the note. The handwriting was shaky, and it simply said, “Thank you.”
Anger surged through her. Who would take Henry’s pie? It was a private ritual, a way to honor her son, and now a stranger had intruded on that sacred moment. Determined to find out who had taken the pie, Nancy decided to take matters into her own hands.
The next day, she baked another pie and placed it on the grave, but this time, she didn’t leave. She hid behind a nearby tree, watching and waiting. After an hour, she saw a small figure approach. It wasn’t the thoughtless thief she imagined—it was a young boy, no older than 9, with ragged clothes and dirt on his face.
Nancy’s heart softened as she watched the boy kneel by the grave. He pulled out a scrap of paper and carefully wrote, “Thank you,” just like before. He wasn’t stealing out of disrespect; he was simply hungry.
As the boy reached for the pie, Nancy stepped out from her hiding place. Startled, the boy dropped the pie and backed away in fear. “I’m sorry,” he cried, “I was just so hungry. Please don’t be mad.”
Nancy’s heart broke for him. She knelt beside him and spoke gently, “It’s okay, sweetheart. I’m not mad. What’s your name?”
“Jimmy,” he whispered, ashamed.
“Well, Jimmy,” Nancy said with a soft smile, “you don’t have to steal. If you’re hungry, all you had to do was ask.”
Tears welled in Jimmy’s eyes as he explained how little he had to eat and how much the pie had meant to him. Nancy couldn’t help but think of Henry—how he had never known hunger, how he had always had more than enough. Jimmy, on the other hand, looked like he had been living with hunger for far too long.
“Come with me,” she said, standing up and offering her hand. “I’ll bake you a fresh pie, just for you.”
Jimmy hesitated, unsure if he could trust her, but eventually took her hand. Nancy led him back to her home, where she prepared a pie, just as she had done so many times for Henry. As the warm scent of apples and cinnamon filled the kitchen, Jimmy watched in awe. When the pie was ready, she placed it in front of him.
“This one’s all for you,” she said with a smile.
Jimmy took a bite, his eyes lighting up with joy. “This is the best pie I’ve ever had,” he said, his voice full of gratitude.
As she watched him eat, Nancy felt something she hadn’t felt in years—a deep sense of peace. For so long, she had baked pies for a son who could no longer enjoy them, but now, she was sharing that love with a boy who truly needed it. In some small way, it felt like Henry had brought Jimmy into her life, a reminder that love and kindness should always be passed on.
By the time Jimmy finished the last slice, Nancy’s heart was full. She realized that this unexpected connection was perhaps Henry’s way of showing her that even in her grief, she could still bring comfort to others. Maybe this was her new purpose—honoring Henry by helping those in need.
As Jimmy looked up with a smile, Nancy felt warmth and gratitude in her heart. She had found a new way to carry Henry’s memory forward, and it filled her soul with peace.
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