Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
I had no idea what it was used for until one person revealed it
People Wondered about the Purpose of These 6 Things & Got Unexpected Answers
The world is a captivating realm, teeming with enigmatic objects that never cease to astound individuals with their appearance and, of course, their elusive purposes.
After all, not everything can be unraveled through a simple Google search, especially when you’re not entirely sure what you’re seeking.
In our everyday lives, mysteries constantly pique our curiosity, compelling us to unravel their secrets. The internet, our boundless portal to knowledge, connects us with online communities of investigators passionate about exploring these enigmas. Through the digital realm, the pursuit of understanding has transcended physical boundaries, offering us a wealth of information and expertise at our fingertips.
Every click delves deeper into the fascinating tapestry of the world, revealing hidden stories and captivating facts. Yet, amidst these discoveries, a universal truth emerges: often, things are not as extraordinary as they first seemed to be. Here are six mystery finds that people wondered about and received unexpected answers.
6. Junk or Something More?
An original poster shared this picture online after finding what they decided to call a “scoopy doodad” in a junk drawer. Holding the mysterious item in both their hands, they turned to the virtual world for help and, of course, answers.
They said it was extremely heavy, came with no markings, and bore a very narrow hole on its top. What could it be?
The Answer: According to netizens, the classic Sunbeam Mixmaster came with a juicer attachment, a bowl that could attach to the top of the mixer. The strange object happened to be the spout the juice would pour out of, with the wire part holding a small strainer to filter out the pulp.
5. An Old Cabinet Find
One user stumbled upon something in an old cabinet, which they said was made entirely of glass and had narrow holes throughout its length. Hoping to find out what it was, they shared the peculiar object’s photo online, and fortunately, many people were quick to solve the puzzle.
The Answer: The odd-looking glass object turned out to be a flower frog, used for holding a flower arrangement in a vase. The person who shared the answer said it had been made obsolete by foam and gels.
4. A Heavy Glass Object
This person turned to Reddit to share a picture of a glass object lying on a wooden table. They said it was extremely heavy, came with no markings, and bore a very narrow hole on its top. What could it be?
The Answer: The mystery of the bizarre-looking glass object was cracked by a genius netizen who used two words to solve the puzzle: Oil candle. We bet you didn’t see that one coming, or did you?
3. The Mystery Object Hiding inside a Bedroom Drawer
A Reddit user didn’t expect to find this unusual object while opening their bedside drawer. Upon closer inspection, they discovered that its bottom appeared to be made of suede or soft leather. But that was all they could manage to guess or conclude.
The Answer: Nobody could have guessed what it was until one user shared the answer and solved the mystery: It was a nail buffer. Even the original poster was shocked and said they clearly didn’t pay much attention to their nails.
2. What’s Hiding underneath the Floorboards?
Sharing the picture of a silver-colored object, somewhat resembling an antique scissor of sorts, one user couldn’t help but wonder what it could be. They said they found the bizarre thing under the floorboards in an 1800’s era home.
The Answer: The mystery of the puzzling item was cracked by one netizen, who shared it was used to remove the top of soft-boiled eggs. Another user quickly confirmed that the answer was correct.
1. A Baffling Hotel Room Find
A guest staying in a hotel room was baffled when they stumbled upon a vertical slot inside their bedside table. They couldn’t help but wonder what it was used for, and when they struggled to find the answer, they decided to ask the online community for help.
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