Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
My MIL Secretly Did a DNA Test on My Child and Was Horrified By the Truth It Revealed
Elizabeth found herself embroiled in family drama when her mother-in-law decided to secretly test her grandson’s DNA, hoping to find evidence of infidelity. However, the results unveiled a shocking family secret.
Imagine thinking you’re protecting the peace within your family by keeping a skeptical in-law at bay, only to have her return with what she believes is a bombshell that will blow your life apart.
Buckle up, because I’ve got a story that’s part Jerry Springer, part Maury, and all kinds of family drama. It all started with my mother-in-law, who, from day one, had it out for me.
My name is Elizabeth. I’m a 36-year-old wife and mother, and this is the story of how my life was almost ruined.
Newborn baby | Source: Shutterstock
I remember the day my mother-in-law first laid her eyes on our newborn son. Instead of the typical adoration you’d expect, she quipped, “Weird eye color, exactly like your neighbor’s!”
Her words left a bitter taste in my mouth. This also marked the beginning of a silent war between us, fueled by her unfounded suspicions of infidelity.
After that, it was like living under a microscope. She always hinted that I would step out on my husband, Oliver. So, I did what any sane wife and protective mama bear would: I banned her from our home. It was a decision not taken lightly but one I deemed necessary to shield our family from her toxic presence.
But as the years ticked by, our little son Nathan grew up and started asking about his grandparents.
“Mom, why don’t I see Grandma like my friends see theirs? Don’t I have a grandpa too?”
Nathan’s question tugged at my heartstrings.
Mother kissing her little son | Source: Pexels
I sighed, knowing this conversation was inevitable. “Honey, you do have grandparents. Sometimes, grown-ups have disagreements, just like how sometimes you might have an argument with your friends. But it doesn’t mean we don’t love you or they don’t want to see you. It’s just… complicated.”
“Can’t we fix it? Like how you fix my toys?” he asked, his voice filled with hope and the simple logic of a child.
I smiled at his innocence. “We’re trying, sweetheart. We’re trying.”
It was this conversation that led me to cautiously reopen our doors to Nathan’s grandmother, despite the years of tension. I allowed supervised visits, hoping my son could get to know his grandmother without the shadow of our past conflicts.
Then came the day that would turn everything on its head. My mother-in-law arrived unannounced, a smug look plastered across her face, clutching an envelope like it was the Holy Grail. My husband, caught off guard, asked, “What’s that, Mom?”
Angry senior woman | Source: Shutterstock
She turned to me, her eyes gleaming maliciously, and declared, “DNA test results that will kick you out of this house, dear Liz!”
I tried to keep my composure. “Oliver wouldn’t test our son secretly. What are you talking about?”
With a flair for the dramatic, she announced, “Surprise! We compared the baby’s DNA with his grandfather’s. 0% match!”
Refusing to let her theatrics corner me, I calmly retrieved a box from the corner of the room and placed it on the table in front of her. The moment she opened it, her smirk faded into disbelief, followed by a startled scream, “BUT HOW??”
Inside the box were the results of our son’s DNA test, confirming his paternity, and a letter from the doctors explaining we had the test due to concerns about a genetic disease – fears that were thankfully unfounded.
Senior woman looking inside a cardboard box | Source: Shutterstock
My MIL’s frustration was palpable. Not only did her plan fail, but a secret she had kept for years was suddenly laid bare. With tears in her eyes and no other choice, she turned to my husband and confessed, “I… I cheated on your father a long time ago, Oliver. He’s not your son’s biological grandfather. I was never sure, but this confirms it.”
The air thickened with her confession. Oliver’s voice, calm yet firm, broke the silence. “You’ve deceived us for too long. I can’t be a part of your lies anymore. Liz and I were right to keep our distance from you.”
At that moment, my husband, ever the embodiment of integrity, confronted his mother with the truth and told her he couldn’t keep her dirty secret from his father. Despite her tearful pleas, he stood his ground, prioritizing the values that defined our family.
When we sat down with my husband’s father, the hurt in his eyes was heart-wrenching.
“Dad, there’s something you need to know,” Oliver began, the words heavy with sorrow. The revelation shattered decades of trust, but in its wake, it also brought an unexpected healing.
Adult son comforts depressed senior father | Source: Shutterstock
Though devastated, Oliver’s father faced the truth with a dignity that commanded respect. “I wish I had known sooner,” he said, his voice breaking, “but I’m grateful for your honesty, son.”
The fallout was swift and decisive. “I deserve to live in truth,” declared my father-in-law, signing the divorce papers with a hand that trembled not from age but from the magnitude of the moment.
“Andrew, please. Don’t do this. I’m sorry. Just give me a chance to…” My MIL’s desperate pleas fell on deaf ears.
“You lied to me all this time, Jennifer. And as if that wasn’t enough, you concocted an evil plan to ruin your son’s marriage. How could you stoop so low? I can’t get past this. I can’t do this anymore.” Despite his firm response, I could see how broken my father-in-law was.
What happened next was inevitable. My MIL’s house of cards crumbled. The family, once under her spell, saw her for who she really was. She lost much more than she had bargained for – her husband, her son, her grandson, and any respect we had for her.
Senior couple sitting apart after a major conflict | Source: Shutterstock
In the aftermath, as we navigated this new reality, our son found joy in the unexpected gift of having his grandfather move in with us.
“Grandpa, are you going to stay with us now?” Nathan asked, his eyes wide with hope.
“Yes, my boy, I’m here to stay,” replied Grandpa Andrew, his voice thick with emotion as he enveloped our son in a hug. It was a moment of new beginnings, of healing wounds and building bridges.
My MIL has been pretty much out of the picture ever since. And as for us: we’re stronger than ever, a family built not on secrets, but on trust, love, and a whole lot of drama that I never signed up for but somehow survived.
Little boy riding on his grandfather’s back at home | Source: Shutterstock
So, that’s my wild ride. Thanks for letting me share. It’s been cathartic, to say the least.
How would you handle the situation if you were in my shoes?
While you’re thinking about the answer, here’s another story you might like: Isabella thought she understood the meaning of sacrifice and loyalty until a single photograph revealed a web of deceit that unraveled her family. What did that photo hold?
mother-in-law shows up and takes control.
This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.
The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.
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