Mom of Boy with Rare Condition Shares Their Life, People React Differently

Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.

At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.

Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.

Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.

Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.

In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.

His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.

Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.

As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”

People in comments react differently.

Mostly people express support and empathy.

But some show a bit of skepticism.

  • Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
  • I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram

Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.

People wondered about the purpose of these 6 things and got unexpected answers

If you’re unsure, look it up on Google, or even better, ask around in the online community for the solution. These days, knowledge is at our fingertips because to the digital age we live in, which not only makes it possible for us to study a vast amount of fresh information but also connects us to other people who have interests in common.

Six individuals approached the Internet users and requested their assistance in identifying the objects they had discovered. They received their responses quickly, as was to be expected.

1. Is it trash or is there more to it?

While rummaging through the junk drawer, someone noticed something that caught his eye. This individual called the object a “scoopy doodad” and was curious to find out what it was or if it was just a piece of junk. He described it as being very heavy, unmarked, and having a very little hole on top.

The online community claims that the original Sunbeam Mixmaster included a juicer attachment, which included a bowl that attached to the mixer’s top and an odd-looking item that served as the spout through which the juice would flow. The purpose of the wire portion that is holding the little strainer is to remove the pulp.

A vintage cabinet discovered

Someone opened an old cabinet and discovered an odd device made entirely of glass with tiny holes running the length of it. They were curious to find out more, and fortunately, other users of the internet were there to inform them of their discovery.

This item turned out to be a flower frog that was used to support a vase of flowers. Have you ever witnessed anything like before?

3. A bulky glass item

Someone found a heavy glass object and asked Redditors to help him identify it. It was unmarked when it arrived, and the top had a very little hole. The people on this site knew the solution, as usual.

Perhaps you were surprised to learn that this thing was actually an oil candle.

4. An enigmatic item discovered in a bedroom drawer

A curious thing was found inside the bed drawer, leaving one Reddit member perplexed. Although the bottom seemed to be composed of soft leather or suede, they were unsure of its possible identity.

It was revealed by a user who was knowledgeable about the item’s nature that this is a nail buffer. It’s something I never would have anticipated.

5. What’s concealed beneath the flooring?

One Reddit member was having trouble identifying a silver-colored device that looked like an old-fashioned scissor. They claimed to have discovered the strange object beneath the floorboards of a house built in the 1800s.

Despite its peculiar appearance, it was discovered that this item, which was used to peel the tops off soft-boiled eggs, was widely utilized and a fixture in many homes in the past.

6. An odd discovery in a motel room

A visitor observed something in a hotel room that intrigued him enough to inquire about it with Reddit users. They couldn’t help but wonder why their bedside table had a vertical slot inside of it.

As usual, Redditors were quick to respond to this person, letting them know that a tablet or laptop may be stored in this position.

Were you aware of what these things were?

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