In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
Nostalgic Summer Vacation Transforms a Woman’s Childhood Friendship into a Heartbreaking Choice between Two Brothers — Story of the Day
A summer return to Serenity Beach reunites Emma with her childhood friends, brothers Noah and Luke. But as familiar banter and old memories resurface, unspoken glances and sharp smirks hint at a deeper tension. This isn’t just a summer of nostalgia — it’s one filled with unexpected choices.
Emma stepped out of the car, letting the familiar salty breeze of Serenity Beach wrap around her like a hug from an old friend.
The family beach house stood unchanged, its weathered white shutters and gently swaying porch swing looking exactly as they did in her memories.
She gripped her bag, her heart racing with a mix of nostalgia and nerves.
“Still smells like summer,” she murmured, inhaling deeply.
For illustration purposes only. | Source: Midjourney
“Come on, Emma, your friends are probably waiting for us,” her mom called, already heading inside with her own suitcase.
Emma hesitated for a moment, steadying herself. She wasn’t sure why she felt so nervous.
It wasn’t like she hadn’t spent every summer of her childhood here. But something about this time felt… heavier.
She stepped onto the porch, her sandals creaking on the wooden planks, and pushed open the door.
For illustration purposes only. | Source: Midjourney
The smell of sunscreen and faint sea salt hit her first. And then she saw them.
“Noah!” she said, her voice brighter than she’d intended. He was leaning casually against the counter, his sun-kissed hair falling into his eyes.
His smile spread wide as he walked over and enveloped her in a hug.
“Emma!” he said warmly.
“It’s been way too long.”
Before she could respond, another voice cut in.
For illustration purposes only. | Source: Midjourney
“Look who’s back,” Luke said from the couch, his legs stretched out confidently. He raised a soda can in a mock toast, his smirk both welcoming and teasing.
Emma felt her cheeks flush. “I guess a few years changes everything.”
“Some things don’t change,” Noah said, grinning.
“Like your terrible taste in music.” He motioned to the headphones draped around her neck, faintly buzzing with an old pop song.
“Excuse me?” Emma shot back, feigning offense.
“You’re the one who still has a playlist dedicated to 90s boy bands!”
For illustration purposes only. | Source: Midjourney
“Here we go again,” Luke muttered, rolling his eyes. “Somehow, I didn’t miss this.”
Emma laughed, her nerves starting to ease. The banter flowed naturally, but she couldn’t shake the subtle shift in the air.
Noah’s warm glances lingered a bit too long, while Luke’s smirks held a sharper edge. She wasn’t sure if she was imagining it or if everything really had changed.
“So, what’s the plan this summer?” she asked, hoping to break the tension.
For illustration purposes only. | Source: Midjourney
“Bonfire tomorrow,” Noah said immediately. “We’ve got to stick to tradition.”
Luke leaned forward, his grin challenging. “But first, volleyball. You in, Em?”
Emma grinned, her competitive side taking over. “Try to keep up.”
The sun blazed down on Serenity Beach, the heat of the day radiating from the golden sand beneath Emma’s bare feet.
She adjusted her sunglasses, squinting at the makeshift volleyball court.
For illustration purposes only. | Source: Midjourney
Laughter and distant waves created a lively backdrop as families played and children’s squeals echoed nearby.
“Alright, Em, no pressure,” Luke called out, spinning the ball in his hands. His smirk was a challenge as he tossed it into the air for his serve. “Just don’t blow it.”
Emma rolled her eyes but couldn’t help smiling. “You wish, Luke.”
The ball flew across the net with surprising force, and Emma dove, barely managing to bump it back into play. The effort sent her sprawling onto the sand.
For illustration purposes only. | Source: Midjourney
Noah was there in an instant, leaping up to spike the ball. It landed with a satisfying thud on Luke’s side of the net.
“Team effort, right?” Noah said, helping Emma to her feet. His hand lingered just a moment too long, and Emma’s pulse quickened as their eyes met briefly.
Luke groaned loudly from his side of the court. “You two are insufferable.”
Emma smirked, brushing sand off her knees. “Jealousy doesn’t look good on you, Luke,” she teased, sticking her tongue out playfully.
For illustration purposes only. | Source: Midjourney
The game picked up again, the competition growing fiercer with each rally.
The ball zipped back and forth across the net, the tension between them simmering beneath the surface.
Luke’s hits became sharper, more aggressive, as if trying to prove a point.
After one particularly intense rally, Emma scrambled for a difficult save, nearly losing her balance. Noah was there again, steadying her with a gentle hand on her arm.
“You okay?” he asked, his voice softer now.
For illustration purposes only. | Source: Midjourney
“Yeah,” she said, feeling her cheeks warm. “Thanks.”
From across the net, Luke’s jaw tightened.
His eyes darted between them, the competitive edge in his tone more pronounced as he snapped, “Game’s not over yet.” He served the ball with even more force than before.
By the time the match ended, all three were breathless and laughing, collapsing onto the sand in exhaustion.
Emma grinned, holding out her hand toward Luke. “Truce?”
For illustration purposes only. | Source: Midjourney
Luke glanced at her outstretched hand but didn’t take it. Instead, he muttered, “You two make a great team. Maybe too good.” His words hung in the air, heavier than the laughter they’d just shared.
Emma’s smile faltered as she watched him walk away. For a moment, the sunny beach felt clouded by the weight of his unspoken thoughts.
The bonfire crackled and popped, casting flickering shadows across the faces of the group gathered around it.
The smell of salty air mixed with the earthy aroma of burning wood, and the occasional burst of laughter punctuated the soft hum of waves in the background.
For illustration purposes only. | Source: Midjourney
Emma sat on a driftwood log, poking absently at her marshmallow as it hovered over the fire.
The warmth of the flames contrasted sharply with the cool ocean breeze brushing her face.
Noah settled beside her, handing her a stick with another marshmallow. Their fingers brushed, and Emma felt a faint tingle run up her arm.
“So,” Noah began, his voice soft, almost hesitant, “how’s everything back home?”
Emma shrugged, pulling her marshmallow from the flame just as it turned golden. “Same old, same old. But this place… it feels like home.”
For illustration purposes only. | Source: Midjourney
A sharp snort broke the moment. Luke, leaning back against another log, took a swig from his soda can. “Home is where people don’t leave for years,” he said, his voice tinged with sarcasm.
Emma flinched at the jab. “I had to study, Luke. You know that.”
Luke straightened, his tone sharper now. “You also had us. Or did that not matter?”
“Luke, come on,” Noah interjected, his tone firm but calm. “Don’t make this a thing.”
“It is a thing,” Luke shot back, standing up.
For illustration purposes only. | Source: Midjourney
“You’re acting like everything’s perfect, but it’s not. She left, and now she’s back, acting like nothing happened. Like none of it mattered.”
Emma shot to her feet, her voice rising.
“I came back because this place means something to me! You don’t get to guilt-trip me for leaving when I didn’t have a choice!”
“To both of us,” Noah said quietly, his words cutting through the tension.
For illustration purposes only. | Source: Midjourney
Luke froze, his sharp gaze darting to Noah.
“Both of us?” he asked, his voice low, dangerous.
Emma’s breath caught as she turned to Noah, who ran a hand through his messy hair. He looked at her, his expression vulnerable yet resolute.
“It means I care about you, Emma,” Noah said, his voice steady. “More than just a friend.”
The words hung in the air like the smoke swirling above the fire. Luke’s jaw tightened, his fists clenching.
“Of course,” he said bitterly. “Perfect Noah. Always swooping in.”
For illustration purposes only. | Source: Midjourney
Emma stepped between them, her heart pounding.
“Stop it! This isn’t about sides, and I’m not some prize to be won. I came here to reconnect, not to cause a war between you two.”
Luke shook his head, his eyes flashing with hurt and anger.
Without another word, he turned and stormed off into the darkness, leaving Emma standing there, torn and overwhelmed.
For illustration purposes only. | Source: Midjourney
The morning sun cast a golden glow over Serenity Beach, its rays glinting off the calm waves as they lapped gently against the shore.
Emma walked slowly toward the pier, her steps heavy, her heart heavier.
The sight of Noah and Luke waiting for her at the end of the wooden planks made her stomach twist.
Both of them stood there, silent but tense, their postures stiff like they were bracing for a storm.
Luke crossed his arms the moment she approached, his jaw tight. “We need to settle this.”
For illustration purposes only. | Source: Midjourney
Emma hesitated, her eyes darting between them. “Settle what?” she asked, though she already knew.
“You have to choose,” Noah said softly, his gaze locking with hers. His voice lacked the sharpness of Luke’s, but the weight behind his words was undeniable.
Emma froze, a lump forming in her throat. She could feel her heartbeat in her ears, loud and unrelenting. “I can’t… I need more time.”
“No more time,” Luke snapped, his voice rising. “It’s now or never, Emma.”
Her breath hitched as tears welled up in her eyes.
For illustration purposes only. | Source: Midjourney
“This isn’t fair. You’re asking me to pick between you two, and I can’t do it…” Her voice broke, the words tumbling out in fragments.
Noah stepped closer, his voice steady but full of emotion. “Emma, we just want the truth. Whatever it is, we’ll deal with it.”
Emma shook her head, the tears spilling over.
“I’ll tell you tomorrow,” she whispered, the promise barely audible. It was all she could manage before turning away and walking back down the pier.
For illustration purposes only. | Source: Midjourney
That night, the house was eerily quiet. Emma moved through her room, folding clothes and packing her belongings, each action slow and deliberate.
The silence wasn’t comforting; it was suffocating. Her mind replayed the moments at the pier, the hurt in Luke’s voice, the hope in Noah’s eyes.
She couldn’t bear the thought of breaking either of their hearts.
As the first light of dawn crept through the window, Emma left a note on the kitchen table. Her hand trembled as she placed it where they’d be sure to find it:
For illustration purposes only. | Source: Midjourney
“I’m sorry. I need to figure things out on my own. Maybe someday I’ll have the answer, but not now.”
The car’s engine hummed softly as she drove away from Serenity Beach. She looked out the window, watching the rising sun bathe the ocean in warm hues.
Her chest felt heavy with guilt and uncertainty, but also a sliver of relief.
For the first time in a long while, she wasn’t making a decision for someone else. She was making one for herself.
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