Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
A Hidden Room, A Dark Secret: What We Uncovered Forced Us to Leave Our Home
We had no idea that our recently acquired dream home would completely upend our life until we discovered a hidden area. We had to move out as a result of what we discovered inside, but we had no idea that this nightmare would bring about an unforeseen turn of events.
I never imagined that I would wake up in a horror movie, yet that is exactly where I am. For years, Jack and I had been saving money to purchase our first house. I was ecstatic when we eventually received the keys. We immediately got to work on the improvements, with me leading the way while Jack concentrated on his task.
“Liv, you sure you’re okay managing all this?” The night before the renovations started, Jack inquired. Encircled by boxes, we reclined on our air mattress that we had borrowed.
I rolled my eyes. “I can handle this. Mr. Big Shot, you put your work first.”
Jack laughed and drew me in. “All right, all right. Just don’t enjoy yourself excessively without me.”
Everything was normal on Tuesday morning, until it changed. As I was enjoying my coffee and browsing through my phone, Carlos, the leader of our renovation team, contacted me.
He exclaimed, “Olivia, you gotta see this.”
Curious about what they’d discovered, I strolled over. Carlos gestured to a piece of the wall they had recently demolished. There was a door there, concealed by years of paint and drywall.
I said, “What do you think it is?”
Carlos gave a shrug. “I have no idea. Would you like to open it?”
I reached for the doorknob and nodded. I opened the creaking door and looked inside. My enthusiasm soon gave way to fear. Shuddering, I slammed the door shut.
“What’s wrong?” Carlos enquired, his expression filled with worry.
I was unable to talk. Reaching for my phone, I punched in Jack’s number. He detected the third ring.
“Hi Liv. What’s going on?”
“Jack, you must return home. Right now.”
“What? Why? Is everything in order?
Taking a deep breath, I tried to control my voice. Something was discovered inside the home. You must view it.
Jack didn’t dispute, so he must have heard the panic in my voice. “I’m on my way.”
I paced back and forth in front of the secret entrance while I waited for Jack. Although Carlos and his team continued to work, I could sense their wondering looks.
“You okay, Olivia?” Carlos paused his efforts to ask.
I nodded, not believing I could talk. My mind was buzzing with ideas. And what if it was a haunted house? What if we had discovered a sinister secret?
Jack was panting heavily when he got there. “Olivia, what’s going on?”
Taking his hand, I guided him towards the entrance. I remarked, “Look,” and carefully opened it.
Jack gasped in shock at what he saw. There were ancient garments in the concealed area that had originally been a closet. The worst part, though, wasn’t that. Insects crawled all over, and mold covered the garments. There was an overpowering smell, and spiders had taken up residence in the corners.
Jack mumbled, “Holy —,” and slammed the door. “How long has that been there?”
I gave a headshake. “I’m not sure. It was never brought up by the realtor.”
For a few while, we stood there in quiet, taking in what we had just witnessed. At last, Jack said something.
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