Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
49ers Star Charvarius Ward the Lose of His 1-Year-Old Daughter
Superstar football player Charvarius Ward shared heartbreaking news on Instagram yesterday, October 29, 2024. In an emotional post, he revealed that his baby daughter had passed away.
49ers cornerback Charvarius Ward recently shared heartbreaking news on Instagram about the loss of his 1-year-old daughter, Amani Joy. Ward, who founded the organization Charvarius for Change in 2021, posted a loving photo of Amani smiling beside a loved one.
In his message, Charvarius expressed his sorrow, sharing that Amani had passed away on Monday morning, October 28, 2024. He described her as a “blessing” who filled their lives with joy, teaching them patience, trust, and positivity.
The grieving father, who began his football career at Hinds Community College, spoke about Amani’s strength and courage. He shared how she brought happiness to every room with her smile, adding that she had overcome challenges at such a young age.
Charvarius and Amani’s mom, Monique, felt privileged to experience the world through Amani’s eyes, which brought positive change to their lives. Charvarius ended his message by saying, “She will forever be daddy’s best friend and mommy’s little girl. We’ll miss you and love you forever, Amani Joy.”
In addition to his post, Charvarius shared on his Instagram Story with a message on a black background, saying, “I’m Broken ,” along with a photo of Amani in a onesie with the words, “My Baby. My Life. My Queen. My Heart. My Everything .” Monique also shared a post on her Story, writing, “My baby. God why? .”
The 49ers also expressed condolences, describing Amani as bringing joy to everyone with her “sweet demeanor and contagious laugh.” They added that they stand in grief with Charvarius and Monique, offering their love and support.
Earlier this year, Charvarius had shared a series of photos of Amani on Instagram to honor World Down Syndrome Day on March 21, 2024. He shared joyful moments with her and spoke about how Amani was a blessing. Initially, he and Monique struggled with her diagnosis, but those feelings turned to love once they saw her. Amani was born on November 17, 2022, and had undergone heart surgery early in life, but her parents cherished every moment with her.
An Instagram account created by Amani’s parents captured key moments of her life, from her birth to joyful times spent with her family. Our deepest condolences go out to Amani’s parents and loved ones as they mourn her loss.
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