Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
10 Curiosities You Probably Didn’t Learn in Biology Class
The world is a big, wonderful place full of facts we never thought possible. For instance, if a pregnant mouse has a sudden medical issue, the fetus will send stem cells to heal the mother, increasing its chances of survival as well. Fetal stem cells have been found in human mothers as well, dubbed by science as microchimerism.
Bright Side dug up some more marvelous facts about nature and its creations, upholding our yearly resolutions to spread knowledge and joy.
1. The heart slows when your face touches water.
As mammals, we can’t breathe underwater, so as part of the mammalian dive reflex, our heart rate goes down in the water — more so if we go underwater. Even splashing the face with water makes the heart slow down, making it a great way to calm down.
2. Fungus can break down plastic in weeks.
It is said that in the future, there may be more plastic in the ocean than fish. This is why the plastic-eating fungus is great news, and there are around 50 new species of such fungi discovered already. One of the fungi discovered can digest plastic within 2 months, so there’s hope for us yet.
3. Newborn babies can support their own weight.
Newborn babies are strong — strong enough to be able to grasp things in their tiny fists and even support their weight as shown by an experiment done in the nineteenth century. Louis Robinson witnessed babies able to hang from a walking stick, from 10 seconds to 2 minutes and 35 seconds.
4. Koala fingerprints have been mistaken for human ones.
We’ve been told that our fingerprints are unique, and they are. But the fact remains that even though we share a common ancestor with the koala that was alive 100 million years ago, koala fingerprints look very similar to human fingerprints, as do chimpanzee fingerprints for that matter.
5. Snails can sleep for 3 years.
If you thought bears had it good with hibernation, meet the snail. Snails can sleep rather than hibernate for 3 years at a time without needing food. Of course, this is with some snail species, not all of them. Meanwhile, bears usually hibernate for just 4-8 months.
6. Sloths need 2 weeks to digest food.
Sloths don’t only move in slow motion — even their insides move slowly, ostensibly to preserve energy, which is why a sloth’s digestive system takes 2 weeks to process the food it ate. Plus, most of what it eats is indigestible, giving it very little energy from each slowly chewed mouthful.
On the other end of the spectrum lies the shrew, whose digestion takes mere minutes and is done so fast, not much of it is fully digested. This is the reason why shrews eat their own feces. They can die of starvation in a matter of hours if they don’t eat.
7. Your brain ignores seeing your nose.
We can see our nose all the time, it’s just that the brain tends to ignore it because it’s a constant visual stimulus. It’s the same with people who wear glasses. After a while, they simply stop noticing them.
8. Your forearm is the same length as your foot.
If you don’t have the time to try on a shoe, measure it from your elbow crease to your wrist. If it fits or is just a little smaller, it would fit your foot because the length of your forearm is the same as your foot. And this is just one of many human body ratios that are a marvel in themselves, including the fact that your femur bone is one-quarter your height.
9. You can “see” your white blood cells.
If you look up at a cloudless, bright blue sky and see some wiggly things at the periphery of your vision, you’ve just experienced the blue field entoptic phenomenon. The wiggly things are white blood cells moving in the fine blood vessels moving in front of the retina, at the back of the eye.
10. Human beings have striped skin, but only cats can see it.
Human beings have stripes and patterns on the skin too, and they are called Lines of Blaschko, name eponymously by the scientist who discovered them, Dr. Alfred Blaschko. These are closer to tiger stripes, forming more of a V-pattern fanning out from the center to the extremities. These lines are visible under UV light, a spectrum that cats can see too, which is why cats can see you as a striped being as well.
Which of these facts turned out to be a revelation for you? Share your extreme nature facts with us and blow us away.
Preview photo credit Shutterstock.com, Shutterstock.com
Leave a Reply