Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Lukе Вryаn Jоinеd by Еnthusiаstiс Yоung Fаn Оnstаgе Whо Sings Аlоng tо Еvеry Wоrd!
Luke Bryan’s Heartwarming Moment with a Young Fan at a Concert
Unforgettable Fan Interaction
At a Luke Bryan concert in August 2013 at the PNC Arts Centre in Holmdel, New Jersey, a young girl’s dream came true when she got the chance to interact with her favorite musician. Her enthusiasm was palpable as she crowd-surfed her way to the front, capturing Bryan’s attention.
A Special Connection
Luke Bryan was pleasantly surprised to see the young fan singing along to every word of his song. This unexpected moment of connection brought joy not only to Bryan but also to the entire audience, creating a memorable experience for everyone present.
Viral Sensation
The touching interaction quickly gained popularity on YouTube, amassing over 8 million views. Fans and viewers expressed their admiration for the special moment, highlighting the impact such fan-artist encounters can have. One viewer commented, “This is probably the most wonderful thing I’ve seen in a long while… The fact that Luke saw this little girl singing his song word for word undoubtedly made his evening unforgettable.”
Experience the heartwarming moment when Luke Bryan shаrеs a special connection with a young fan at his concert, a testament to the power of music in bringing people together.
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