Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

My 7-Year-Old Drew a Picture of My Husband with Another Woman and Wrote, ‘I Can’t Wait for You to Be My Mom’

When Amber, a hardworking mom and corporate attorney, discovers a drawing by her 7-year-old daughter, Mia, her world is shaken. The picture shows Mia’s teacher in Amber’s place with a heartbreaking caption. Suspecting betrayal, Amber confronts her husband, Jack, only to uncover something deeper… Mia’s feelings of abandonment amidst Amber’s busy life.

I didn’t think I’d be here… but this has been life lately.

A woman looking out the window | Source: Midjourney

A woman looking out the window | Source: Midjourney

I’m Livia, I’m thirty-four, married to my husband Jack for ten years, and I’m a mom to my bundle of joy, Mia, a seven-year-old little girl. Recently, I’ve been busier than I’ve ever been in my entire life, which is truly saying something because I’m a corporate attorney.

My mom’s health has been declining over the past year, and we’ve been throwing ourselves into her hospital stays, therapy sessions, and medication that costs way more than I care to admit.

To cover everything, I’ve been working insane hours because I’d do anything for my mother.

A woman sitting in a hospital bed | Source: Midjourney

A woman sitting in a hospital bed | Source: Midjourney

Anything.

Jack has been the best partner and rock I could have ever asked for. He has stepped up at home in ways I never imagined or expected. Jack has taken on the cooking, cleaning, helping Mia with her schoolwork, and managing all the little things I used to handle.

He made it possible for me to keep everything afloat, even when it felt like I was drowning.

A father and daughter duo sitting on a couch | Source: Midjourney

A father and daughter duo sitting on a couch | Source: Midjourney

But last night, everything changed before I could even catch my breath.

I came home late, exhausted, starving, and ready to collapse. After hurriedly eating a bowl of salmon and rice while Mia took her bath, I put my little girl to bed. As she dozed off, Mia mumbled something about puppets.

“I didn’t know that you could put your hand in a socket and it would be a puppet,” she said.

A green sock puppet | Source: Midjourney

A green sock puppet | Source: Midjourney

“A sock, my darling,” I said. “Not a socket! Don’t you ever put your hand in a socket, Mia.”

She giggled.

“Okay, Momma,” she said, yawning.

A yawning little girl | Source: Midjourney

A yawning little girl | Source: Midjourney

I started tidying up her dolls, which were scattered all over the carpet in her room, and then made my way to the coffee table in the living room. Crayons, white paper, and coloring books were scattered all over.

That’s when I found it. A drawing.

At first glance, it seemed innocent enough. A kid’s sketch of a happy family. A man, a woman, and a little girl holding hands. But when I looked closer, my stomach twisted.

A woman gathering crayons | Source: Midjourney

A woman gathering crayons | Source: Midjourney

The man was unmistakably Jack. The little girl was clearly Mia. But the woman? Definitely not me.

She had long brown hair and wore a flowing bridal gown. Beneath the drawing, in Mia’s little handwriting, were the words that broke my heart:

I can’t wait for you to be my mom!

It felt like the ground beneath me had given way.

A child's drawing | Source: Midjourney

A child’s drawing | Source: Midjourney

I took the picture to Mia’s bed and sat on the edge, trying to wake her up enough to get answers.

“Darling girl, can you tell me about this drawing?” I asked her calmly.

“What drawing, Momma?” she asked, rubbing the sleep from her eyes.

When Mia took a look at the drawing, her face turned red, and she snatched the paper out of my hand, clutching it to her chest.

An upset little girl | Source: Midjourney

An upset little girl | Source: Midjourney

“You weren’t supposed to find that! Daddy said to hide it better!” she blurted out.

Hide it better? Jack? Hide what better?

My heart started pounding. What was going on? Was Jack cheating? And what was worse… was Mia already imagining this other woman as her mom?

An upset woman sitting on a couch | Source: Midjourney

An upset woman sitting on a couch | Source: Midjourney

I barely slept that night. My mind was running miles per hour. I thought about my mother, I thought about the work I still needed to do before heading to the office the next day, and I thought about my marriage…

By the morning, I had gone through a storm of worst-case scenarios. I sat in the kitchen, waiting for Jack to get ready for work. Mia had already left for school.

“What is this?” I demanded, thrusting the drawing into his hands.

An upset woman standing in a kitchen | Source: Midjourney

An upset woman standing in a kitchen | Source: Midjourney

His eyes widened, and his face turned pale.

“You told her to hide it?” I asked. “You actually told Mia to hide it?”

“Wait, wait,” he stammered, holding up his hands defensively. “It’s not what you think, Amber. Let me explain it all to you.”

A worried man standing in a kitchen | Source: Midjourney

A worried man standing in a kitchen | Source: Midjourney

“You have exactly five seconds, Jack. I’ve been going crazy the entire night.”

My husband ran a hand through his hair, clearly distressed.

“Come with me,” he said.

“What? Where are we going? What about work?” I asked.

A man standing in a kitchen with his head bowed down | Source: Midjourney

A man standing in a kitchen with his head bowed down | Source: Midjourney

“We’re going to Mia’s school. I need to show you something,” he said.

I wanted to scream at him, but something in his voice, an urgency that didn’t feel like guilt, made me agree.

The drive to the school was tense and silent, my mind still racing. What would Jack show me at Mia’s school that would change anything? Was there an imaginary friend or imaginary step-in mother waiting for us?

An upset woman sitting in a car | Source: Midjourney

An upset woman sitting in a car | Source: Midjourney

When we arrived at the school, Jack squeezed my knee. As we walked to the reception area, he squeezed my hand and asked to see Mia’s teacher, Clara.

As soon as Clara walked in, I felt like I’d been punched in the gut. She was stunning, and for the life of me, I couldn’t remember why I hadn’t met her before. She had long brown hair, a bright smile, and an effortlessly bubbly demeanor.

She had to be the woman from Mia’s drawing, it was unmistakable.

A smiling woman | Source: Midjourney

A smiling woman | Source: Midjourney

She smiled at Jack, and I wanted to scream.

“Clara,” Jack said. “Can you explain to my wife what’s been happening with Mia?”

Clara’s expression shifted to confusion but then softened as she glanced at me.

“Oh, of course,” she said.

A stressed woman | Source: Midjourney

A stressed woman | Source: Midjourney

She gestured for us to sit in the little room adjacent to the reception.

“Look, Mia’s been having a tough time lately,” she began. “She’s mentioned feeling like her mom doesn’t have time for her anymore. I’ve tried to reassure her, but she’s… well, look, she’s seven. And she’s been drawing a lot of pictures to process her feelings.”

Clara handed me a stack of drawings, and my heart sank as I flipped through them.

A stack of children's drawings and coloring books | Source: Midjourney

A stack of children’s drawings and coloring books | Source: Midjourney

Most were variations of the same theme. A happy family with Clara in my place. On the back of one of the drawings, there were more words I hadn’t noticed the first time:

Daddy and Clara.

“So, you’ve been spending time with my daughter?” I asked, unable to hide the edge in my voice.

An upset woman | Source: Midjourney

An upset woman | Source: Midjourney

“Yes, of course,” she said. “But only in class, and I’m her teacher, after all. She stays after class sometimes to help me tidy up. She told me she feels like she’s losing her mom because you’re always busy. I’m so sorry if I overstepped. I’d never want to interfere…”

I turned to Jack, my chest tight.

“And you? What did you say to her about this?”

A stressed man | Source: Midjourney

A stressed man | Source: Midjourney

Jack looked miserable.

“I found that picture last week,” he admitted. “I told Mia it wasn’t true, that you love her more than anything. But I didn’t know how to handle it. I didn’t want to make it worse by bringing it up when you were already so stressed out. I told her to put the drawing away because I knew it would hurt you.”

“You should have told me, Jack,” I said softly.

A woman holding her head | Source: Midjourney

A woman holding her head | Source: Midjourney

I honestly didn’t know what to think.

Jack nodded, guilt in his eyes.

“I know, love,” he said. “I thought I was protecting you, but I see now that I just made it worse.”

An upset man | Source: Midjourney

An upset man | Source: Midjourney

My anger began to deflate, replaced by a wave of guilt so heavy it nearly knocked me off my seat. This wasn’t about Jack cheating or Clara overstepping. It was about my daughter, her sadness, her confusion, and her way of coping with my absence.

That night, I sat down with Mia at the kitchen table. I had dished us bowls of ice cream with all the toppings, hoping for a bonding moment between us.

Bowls of ice cream | Source: Midjourney

Bowls of ice cream | Source: Midjourney

“Sweetheart,” I said softly. “I need to tell you something. I know I haven’t been around as much lately, and I’m so, so sorry. Grandma needs a lot of help right now, but that doesn’t mean I don’t want to be with you. You’re my everything, sweet girl.”

Mia’s eyes filled with tears, and she threw her arms around me.

“I thought maybe you didn’t like me anymore,” she whispered.

A little girl sitting at a table | Source: Midjourney

A little girl sitting at a table | Source: Midjourney

My heart shattered.

“I love you more than anything,” I said, holding her tightly. “Nothing will ever change that.”

In the weeks that followed, I made several lifestyle changes.

I cut back on work hours and asked my siblings to take on more of our mom’s care. Jack and I started a “Mom and Mia” night every week, just the two of us, doing whatever she wanted.

A little girl decorating cookies | Source: Midjourney

A little girl decorating cookies | Source: Midjourney

Sometimes it was baking cookies, other times it was a movie night, or building a fort, or sometimes it was just us dressing up and going on a date together.

I also had a heartfelt talk with Clara to thank her for being a wonderful teacher and being there for Mia when I couldn’t be.

She apologized again for any boundaries she might have crossed, but I reassured her that Mia’s drawings weren’t her fault.

A blanket fort in a living room | Source: Midjourney

A blanket fort in a living room | Source: Midjourney

“I just feel bad, Amber,” she said as she cleaned up paintbrushes.

“I know, but you really shouldn’t, Clara,” I said. “You became a safe space for Mia, and you reminded her of how loved and cared for she is. That’s something I’ll always appreciate.”

Life isn’t perfect, but it’s a lot better. I’m learning to ask for help and to show Mia that she comes first. And now, every time she picks up her crayons, I make sure I’m sitting right next to her.

A smiling mother and daughter duo | Source: Midjourney

A smiling mother and daughter duo | Source: Midjourney

If you enjoyed this story, here’s another one for you: Sam used to be a mama’s boy, always clinging to Candice and lighting up at the sight of her. But one day, that changed. He started avoiding her hugs, her kisses, and even her presence. At first, I thought it was just a phase. But there was more to it. Much more.

This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.

The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.

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