Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.
For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.
Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.
The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.
Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.
Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.
“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.
Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.
Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.
But despite her suffering, she remains upbeat and happy and has even found love.
She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.
He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.
”He came and he showed me that I could live a true love story”, she says.
But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.
”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.
Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.
”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.
A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:
”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.
“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”
His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.
Karine wants others to realize the importance of being positive.
”Be happy, smile, because life happens only once,” she said.
In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.
Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.
Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.
Bruce Willis’s family facing tragic new health battle as daughter struggles
The Willis family has gone through a lot during these past months, and their struggles are far from over.
Ever since the Die Hard star was diagnosed with a condition that affects one’s ability to communicate, the world fell silent. His family provided him with extreme support and has been updating his fans of Bruce’s condition regularly.
Bruce withdrew from from the spotlight, and later on, he was diagnosed with a more specific condition; frontotemporal dementia.
“Our family wanted to start by expressing our deepest gratitude for the incredible outpouring of love, support and wonderful stories we have all received since sharing Bruce’s original diagnosis,” his daughter Rumer Willis posted on the social media.
“In the spirit of that, we wanted to give you an update about our beloved husband, father and friend since we now have a deeper understanding of what he is experiencing.
“Since we announced Bruce’s diagnosis of aphasia in spring 2022, Bruce’s condition has progressed and we now have a more specific diagnosis: frontotemporal dementia (known as FTD).”
As Bruce’s wife, ex-wife, and his daughters were as well affected by his illness, his daughter Tallulah, whom the actor shares with Demi Moore, is experiencing issues with her mental health and they get worse as her father’s health condition worsens.
Tallulah spoke openly of her anorexia after she was dumped by her fiancè Dillon Buss less than three months after her father’s aphasia diagnosis.
As per reports, Bruce is being aware of his daughter’s suffering.
“Bruce could see her wasting away and it only made his own problems worse,” a source said, as reported by Radar.
“Bruce was shattered when he saw Tallulah’s suffering,” the insider went on.
“It got to the point where the family thought it would be better if they weren’t around each other at all.”
Tallulah has been diagnosed with borderline personality disorder after she checked into an in-patient facility following the breakup.
In the essay she penned for Vogue Magazine, Tallulah explained that her struggles with body dysmorphia began when she started taking medication for ADHD.
“I felt smart for the first time,” Tallulah said of taking her medication, “but I also started to enjoy the appetite-suppressant side effect of the meds. I saw a way to banish the awkward adolescent in favor of a flighty little pixie. And like so many people with eating disorders, my sense of myself went haywire.
“There’s an unhealthy deliciousness at the beginning of losing weight rapidly. People are like, ‘Oh wow!’ And then quickly it turns to, ‘Are you okay?’ My friends and family were terrified, and I dismissed it.”
The 29-year-old added: “By the spring of 2022, I weighed about 84 lbs. I was always freezing. I was calling mobile IV teams to come to my house, and I couldn’t walk in my Los Angeles neighborhood because I was afraid of not having a place to sit down and catch my breath.”
We truly hope Tallulah would be able to overcome her health issues.
Leave a Reply