Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Camila Cabello Reveals the Unexpected Inspiration Behind Her Ice Block Purse, and People Can’t Help but Notice One Detail
Camila Cabello caught everyone’s attention at the Met Gala with her unique ice clutch. The event took place at the Metropolitan Museum of Art in New York City on May 6, where the 2024 Met Gala showcased some unforgettable looks. Her choice of accessory was especially unusual and came with a unique story.
Camila Cabello explained her unique accessory choice to Extra, saying, “I feel like it is impermanence and things decaying over time and the beauty in that.”
True to its theme, the ice clutch didn’t last the night. The former Fifth Harmony star revealed that the purse had transformed during the event. “It was a purse,” she said, “but then it broke about 5 minutes into being in line, so I called my stylist like, ‘What do I do?’”
With some quick thinking, Cabello decided to hold the remaining piece like a clutch and remarked, “We’re just trying things here.”
The clutch wasn’t just a block of ice. Designed by Jane Wade, it also featured a copper rose, echoing the single flower on the gala’s invitations, tying into the overall theme beautifully.
Cabello’s outfit included more nods to the theme of “beauty in decay.” Her stunning gown, designed by Ludovic de Saint Sernin, weighed 15 pounds and was adorned with 250,000 Swarovski crystals. The dress had intentional rips at the bottom, linking back to her theme of impermanence. To complete her look, she wore iridescent makeup and styled her hair in a “wet” ponytail.
The “Señorita”singer had the gala’s “Garden of Time” theme in mind when assembling her outfit, but she was also inspired by something else — her upcoming album, C,XOXO, set to release on June 28.
“It’s Miami-themed,” she shared with Variety, “so we’re dripping, we’re wet.” This statement not only ties back to her album’s theme, but also cleverly connects with her look and the gala’s overall ambiance.
Fans were quick to react to Camila Cabello’s unique ice purse, noticing that it was actually made from real ice as droplets visibly fell from it. Many initially mistook it for glass until they saw the melting. Concerned comments also emerged, with fans asking about the comfort of her hand, wondering, “Is your hand doing okay?” and even humorously questioning, “How did your hand not fall off?” One fan expressed admiration, exclaiming, “You are incredible! How could you even hold the ice for such a long time?”
The 2024 Met Gala featured the theme “The Garden of Time,” inspired by J.G. Ballard’s 1962 story. Celebrities wore outfits that highlighted the brief and changing nature of beauty and time. Check out more outfits here.
Preview photo credit ANGELA WEISS/AFP/East News, ANGELA WEISS/AFP/East News
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