Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Fаrmеr Аnd 16 Соws Fоund Dеаd, Саusе Оf Dеаth Finаlly Disсоvеrеd
Note: we are republishing this story to raise awareness for the Mike Biadasz farm safety and education memorial fund. Learn more at their Facebook page here as well as their website here.
A farmer and 16 of his cattle have died in a freak accident after a “dеаdly dome of air” formed in a Wisconsin farm’s manure holding tank.!!
According to WAOW, a 29-year-old farmer named Michael Biadasz, from Amherst, Wisconsin, died of gas poisoning on his family’s farm after being overcome by fumes of either methane or sulfur oxide. Initially, 13 of the farm’s cattle died as well; later, three more expired, bringing the total to 16 cattle dеаths.
The 29-year-old’s father, Bob Biadasz, co-owner of Biadasz Farms, said that the tragedy was the result of a “perfect storm” of unusual and unexpected weather conditions. When the tank was prepped to be pumped, warm upper air temperatures trapped the gases in a dome of air which then poisoned Michael and the cattle.
Biadasz was reportedly found dеаd when other workers arrived to begin hauling manure away from the tank.
“The family is devastated, absolutely devastated,” Portage County Coroner Scott Rifleman told WAOW.
Rifleman told WSAW that gas poisoning dеаths typically occur in closed areas, making the incident even more surprising. The coroner said that atmospheric pressure prevented the gases from dissipating.
The coroner went on to say that an investigation is underway to determine exactly what caused Biadasz’s dеаth. According to Rifleman, Biadasz had safely emptied the same tank hundreds of times prior to the fatal incident.
The Biadasz family honored Michael by parking a line of tractors and machinery along the road that passes the farm. Among the vehicles parked are a blue tractor, several red trucks, and Michael’s black pickup truck…
“As if there isn’t already enough dаngеr in the lives of farmers, this family had to suffer this freak accident,” one Facebook user commented on the story. “So sad.”
Following the tragic accident, many are calling for tougher regulations to be placed on manure holding tanks to prevent a similar incident in the future. According to All That’s News, the National Agriculture Safety Database says that there should be proper ventilation in areas where animals are stored and that warning signs must be posted nearby.
“In addition to adhering to proper construction and maintenance procedures for liquid manure storage facilities, owners should be encouraged to follow a few precautionary measures to protect both workers and livestock from harmful manure gases,” the NASD writes.
WASW reports that a similar unfortunate fate befell a Virginia family in 2007, when five of its members died as a result of a pipe blockage that caused a fatal buildup of methane gas.
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