Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
If you see a man with one painted fingernail, here’s what it means
When Elliot Costello and a group of other people visited Cambodia, he had an encounter with a young girl named Thea.
Little did Elliot know that this encounter would have an impact so profound on him that it would help start a movement whose goal is to end sexual abuse against children.
Namely, Thea always had nail polish on her tiny nails. One day, as she and Elliot chatted, she asked to paint one of his nails. He agreed and was happy to speak to the chatty girl, but he then learned that she was once a victim of sexual abuse.
“As she painted one of my nails, I assured her I would always keep it that way to remember her, and by extension, her suffering,” Elliot said.
This motivated Elliot to try and make positive change among men so that less and less children fall victims of sexual abuse.
That is when he came up with the movement called #PolishedMan where men put nail polish on one of their nails. That one nail represents the one in five children who will be victims of sexual violence.
Polished Man works towards ending sexual violence against children. According to the organization, “being a Polished Man means challenging violent behavior and language, both locally and globally.”
Elliot believes that since men are responsible for 96% of this type of violence against children globally, they should be catalyst for change if we are ever to see an end to the abuse of innocent children.
The goal with the painted nail isn’t just to remind people of the number of children who are abused every single day, but to serve as a conversation starter about this reality, leading to new ideas about prevention. He also hopes that people will start donating to “support educational programs and resources for child survivors of abuse,” as per APlus.
We hope that more men, including celebrities
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