Only weeks after Millie Smith and Lewis Cann learned they were having twin baby girls, they learned that only one would survive.
On April 30, after 30 weeks of a high-risk pregnancy, Smith delivered identical twins, Callie and Skye, the latter who lived only three hours.
Later in neonatal intensive care unit (NICU), Callie slept without her sister in the incubator, with her loving and grieving parents watching over her. In the unit with other babies, an overwhelmed mom of healthy newborn twins innocently told Smith that she was “so lucky” to not have two babies.
Crushed by the words, the new mom couldn’t find the words to explain her loss. Then, she realized that Skye’s legacy was to help other families who lose a child, and it came in the form of a purple butterfly.
In November 2015 Millie Smith and partner Lewis Cann found out they were having their first Child. Smith, who has twins in the family, said she had a “gut feeling” about having a duo and 10 weeks later, doctors confirmed she was expecting identical twin girls.
Less than two weeks after the excitement of knowing they would double the children in their home, the British couple were devastated to learn that one of their babies had a fatal condition and wouldn’t survive after birth.
“During the scan, the doctor didn’t say anything. I was very excited and loved seeing the little babies, but she was silent. Both Lewis and I immediately knew there must be a problem,” Smith said.
Doctors shared the news that one of the babies had anencephaly, which according to the Centers for Disease Control and Prevention (CDC) affects about one in 4,600 babies across the U.S. It’s a serious birth defect where a baby is born without parts of the brain and skull, and “almost all babies born with anencephaly will die shortly after birth.”
Knowing that one baby would die soon after birth, and that there were risks involved for their other baby, the couple decided to move forward with the extremely high-risk pregnancy.
Over the next several months, Smith and Cann named their twins Skye and Callie. “We knew that Skye needed to have a name before she was born,” Smith said. “Knowing she would only survive for seconds or minutes, I wanted her to be named during that time.”
The meaning behind “Skye,” she explained “was somewhere we knew she would always be, that we could look up at the sky and remember our baby.”
When Smith went into labor after only 30 weeks on April 30, she needed an emergency C-section. To help navigate the loss, the couple had a “bereavement midwife” during the birth, and they were put I a special room the called the “Daisy Room,” where families can spend time with a baby before and after she/he passes.
“When the girls were born, they both cried. This was a huge moment, as we were told that Skye would not make a noise or move,” said Smith, who was thankful to have three hours with Skye before she died. “We were cuddling Skye when she passed away. This was the worst moment in our lives. I have never ever felt heartbreak like that before. But I am proud that she fought for so long to spend time with us.”
Born premature, Callie had to stay in NICU while she gained some strength and also in the unit were three other sets of twin.
“Most of the nurses were aware of what had happened, but as time passed, people stopped talking about Skye. After about four weeks, everyone acted as though nothing had happened, meaning the families around me had no idea about our situation,” Smith recalled.
One morning, a stressed mother whose twins were also in NICU, harmlessly said to Smith that she was “so lucky” to not have twins.
“None of the other parents knew what had happened or anything about Skye. The comment was completely innocent and more out of humor…They weren’t to know that I did at one point have two.” Smith continued, “But the comment nearly broke me. I ran out [of] the room in tears and they had no idea why. I didn’t have the heart to tell them what had happened. A simple sticker would have avoided that entire situation.”
It was in that moment Smith realized she had to create something that would speak for parents who had just lost a baby, ensuring the misunderstanding never happens again.
She designed a poster for the NICU explaining both hospital personnel and visitors that any incubator with a purple butterfly on it means that one or more babies, in a set of multiples were lost.
“I chose butterflies, as I felt it was fitting to remember the babies that flew away, the color purple because it is suitable for both boys or girls,” said Smith.
The purple butterfly concept–now under the Skye High Foundation–has spread to hospitals in several countries around the world.
Callie is now a lively, happy seven-year-old, and twin’s memory lives in purple butterfly cards along with other initiatives to help families with babies like Skye all over the world. The purple butterflies now come in numerous forms, like ornaments, cards, blankets, stuffed animals and more.
“Ultimately I will never be able to stop this from happening but the more support groups we can set up and put things in place like the stickers the better it will be. It’s the hardest thing anyone has to deal with,” Smith said.
My Daughter-in-Law Made Me Choose between Living in Basement or Nursing Home
After Cecile’s husband, Henry, passes on, she seeks solace by moving into her son’s house. But when she gets there, her daughter-in-law makes her choose between their dark and unwelcoming basement and a nursing home. What happens when Cecile decides on another option altogether?
Losing a partner after forty years of marriage is traumatizing. Loneliness is felt immediately, but it becomes all the more consuming as time goes on. When Henry, my husband, died of a heart attack, I felt this sense of loneliness harder than anything else.
The grief took over, and all I wanted was to be around family. I have two sons, Jack and Edward – Edward moved to Oxford straight out of college because he was awarded the opportunity to further his studies. He calls me every evening just to chat about our days. Jack, on the other hand, lives not too far away from me. He is married to Lucy and has a son named after my husband.
So, now that I’m all alone in this big house Henry bought when we were just starting our family, I’ve been trying to decide whether to sell the house or live with Jack, as he offered, or move out by myself.I decided to try living with Jack. It would be the most comforting thing. But little did I know, Lucy had other plans for my accommodation. I asked my niece to pack up the place while I settled into my new home with Jack and his family. So, I was at their doorstep, suitcases at my feet
. Ready to take on the role of a live-in mother and grandmother — taking over the kitchen whenever Lucy needed me. Lucy came to open the door, a mug of coffee in her hand, and told me that their house was bursting at the seams with the limited space and that the only room available was Henry Jr.’s room. But she wasn’t about to upset the room and change it in any way. It was for Henry when he returned from his semester at college. I understood that. It was his space, and I didn’t want to be a burden.
But I had assumed that Jack would have sorted something out for me — he was the one who asked me to move in if I needed it. “Cecile, we’ve got a bit of a space issue, as you can see,” Lucy repeated. “You’ve got two options,” she continued. “There is the basement, or there’s a nursing home. Your call, grandma.” Talk about a rock and a hard place. Now, let me tell you about their basement.
It’s not the basement you may find in some homes — there’s no converted space for gaming, sewing, or arts and crafts. It’s not a den or cozy room for guests. Jack’s basement is more of a cold, humid dungeon with a bedframe that sighed at every move and a mattress with sharp springs. This was not the comfort I needed.”Lucy,” I said, shuffling my weight from one foot to the other.
“I appreciate the options, dear. But I’ll pass on the basement and nursing home combo.” Cue to my son — trying to play the peacemaker. He came up from behind Lucy, his arm around her waist. “Mom, I’m sorry. I wasn’t thinking when I invited you to stay. Lucy has a point. We’re tight on space. I promise to get some furniture for the basement to make it comfortable for you.” A basement life wasn’t for me. A nursing home wasn’t for me — at least not yet. So, I just took matters into my own hands.
I dragged my suitcases to the car and drove to my niece’s home. I stayed there for a week while looking for a place I could buy. The house was already on the market, and once it was sold, I knew I would have more than enough money to buy a small place for myself. When everything was settled, my niece helped me move in, and I felt empowered. Maybe I didn’t need family as much as I thought I did.
Edward was worried about me being alone, but I reassured him I would be fine. I moved into the new apartment soon after – a cozy one-bedroom, perfect for me and the cat I hoped to adopt. The bonus was that it came fully furnished, so I didn’t have to worry about anything.
Then, Jack phoned and asked me to dinner with him and Lucy. I drove to their home, wondering what they expected from me. We sat down for dinner, and I told them I had bought an apartment and lived there alone. “I thought you were staying with Mia,” Jack said, referring to my niece.”You can’t be serious!” Lucy exclaimed at the same time. “I did stay with Mia until I moved. I needed my own space.”
“You said that you want to be around family, so I offered,” Jack said, turning red. “Yes, but if it meant being shipped off to a nursing home or having to stay in your basement, I think I’m better off alone.” Then, I left. A few weeks later, I adopted my cat. But I also rewrote my will, leaving everything to Edward, who continues putting money into my account every month, even though I told them I didn’t need it.
“A son must help his Mom,” he said. He also asked me if I wanted to move abroad with him — but how could I? I needed to be close to where Henry rests, at least for now. So, from basement dilemmas to a cozy haven of my own, life certainly throws you for a loop. If your child gave you those options, what would you have done? Here’s another story for you: Elizabeth placed her father in a nursing home and never saw him again. She only visited him at his funeral. But the young woman’s karma caught up with her and taught her a harsh lesson when she received a letter from him after his death…
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