Most moms will agree pregnancy and labor can be a scary time and all you want is to deliver a healthy baby, kicking and screaming.
But one mom was faced with the unthinkable when her baby boy was born with medical issues that left him on a ventilator.
Lisa Hough shared an image of her sweet baby grandson born to her daughter Chelsea and also shared the unthinkable tough decision that her daughter had been faced with.
The mom of three and nana of two said her grandson Karson had been born with many medical complications.
“The only way to describe what has happened is that this beautiful baby boy has suffered two very rare traumatic conditions that are completely unrelated to one another,” Nana Lisa shared on her Facebook page.
She added her newborn baby grandson had suffered a “hemorrhage in the left temporal lobe” and had also been diagnosed with a rare, genetic, metabolic disorder called Non-ketotic hyperglycinemia (NKH).
“His case is presented as severe and would cause him to be severely neurologically impaired – functioning at a 2-3 month old level at best for his lifetime,” Lisa wrote.
His mom, given all the information from the medical staff around her, made the incredibly tough decision to take him off life support.
Lisa wrote of the heartbreaking moment they had to say goodbye to their sweet little one.
“While we weren’t ready to say goodbye to Karson, we had come to terms with the inevitable. We were given 10 minutes after withdrawing intensive care and the ventilator and told he would not breath on his own and to expect his heart to stop within those 10 minutes.
But, according to Lisa, it seemed “God had other plans” and said she and her daughter witnessed a miracle.
“He immediately started breathing on his own once the ventilator was removed, heart rate and oxygen stabilized, and here we are 5 hours later with this miracle baby that we were told would never breath, swallow, have gag reflexes, or even survive. He is breathing unassisted.
“He is swallowing. He is surviving. He even has slightly opened his eyes a couple times today.”
She said his doctors had no explanation for what happened saying no medical or science data supports this little fighter surviving; the only explanation they have is that it’s a miracle.
“I’m not sure why I ever thought we were so underserving of a miracle…and I’m not sure how long we have with him, but we have him now. And now we will take,” Lisa wrote.
Finally, on March 1, she and her family were given the joyous news that their tiny bundle of joy would be coming home that week.
“Every day, I am brought to my knees, and just when I think God is done, I am quickly reminded that he isn’t….I have no words for my gratitude and I will praise Him for as long as I have air in my lungs for giving Karson his,” Lisa wrote.
From her very first post, commenters were fully supportive of the journey, celebrating the survival of Karson with more than 30,000 reactions to the post announcing the wonderful news that Karson survived and is thriving
Mom of rare twins with Down syndrome shuts down critics with photo showing how beautiful they are
Twin pregnancies are still quite uncommon, despite a 72% increase in likelihood between 1980 and 2018. Twins are born in about 33 of every 1,000 births.
What are the probabilities of having identical twins? Out of 1,000 births, three to four are identical twins on average. So once more, not very common.
Savannah Combs, age 23, was overjoyed to learn she was expecting twins. She then discovered that they both have Down syndrome, which is also unusual.
Of course, the information was upsetting. Savannah and her husband Justin Ackerman were aware that due of her illness and the state of her children, some people would judge them.
But Savannah finds that to be the same thing that makes them so beautiful.
“It’s very rare what they have, but they’ve been my little gems,” she mentioned.
Savannah, a Middleburg, Florida native, posted videos of her postpartum journey on TikTok with her kids Kennadi Rue and Mckenli Ackerman, and the videos immediately acquired popularity.
Savannah said in one of her videos that she was advised to abort her children because they wouldn’t survive.
She made the choice to keep them and give them a shot.
”Every [prenatal] appointment they were alive was a blessing to me,” Savannah explained.
Her spouse was gone at boot camp when she found out they both had Down syndrome.
When Savannah was admitted to the hospital, she was 29 weeks along with her pregnancy and gave birth to twin daughters. Kennadi Rue and Mckenli Ackerman, identical twin daughters, were born on May 12, 2021.
The twins had to spend a few weeks in the NICU before going home because they were born two months early.
“They’re called mono di twins, meaning that they had their own sacs, but they shared the same placenta, meaning that they were going to be identical,” she said.
“Mo di twins as it is, it’s like very rare. And then you throw Down syndrome on top of it, it’s like one in 2 million.”
They are just like any other youngster, according to Savannah, despite having an uncommon disease.
“They have feelings. They have a beating heart. They know how to talk. They know how to do things you do. They will get there,” she said.
“Like I said, it may be a step behind but they’re going to do it. I’ve learned these kids are feisty little things and happy little things.”Savannah posts wonderful updates on TikTok as each youngster continues to reach their milestones.
“I’m going to let them know that they’re just like us and they’re going to get there as long as they put their minds to it.”
Nevertheless, some people feel compelled to be critical of Savannah and her family. The young mother was forced to respond to some extremely cruel people on social media as a result.
”I wouldn’t want those babies; if mine came out like that, they would be straight up for adoption,” one person wrote to the mother.
Savannah, though, had the ideal response, which she posted on Facebook.
“I said, good thing they weren’t born to you and were born to me. God knew what he was doing by giving these babies to the right parents who would love them regardless.”
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